I finally have a start date for chemo: June 12th. Each IV infusion will take 4 hours (the first one may take up to 6 hours) and I'll get 1 every week for 4 weeks. I'm actually counting the days til then, because this will hopefully be the beginning of some kind of remission from this disease. While some symptoms have abated with the prednisone, the vasculitis is progressing, and now the nerves in my right hand are getting numb and unresponsive, to match my left. Yikes! I also look forward to reducing my prednisone dosage. In addition to a bunch of other issues, it keeps me from sleeping more than 4 hours at a time.
On another positive development, in preparation for the infusions, I had a battery of 17 blood tests that showed that my kidney function has continued to improve by over 50% from when I was first diagnosed. Even my anemia seems to be resolving. And next week I don't have even one doctor's appointment! Woo hoo!
I know better than to wish the days away, but the 12th can't come soon enough!
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